Manufacturing My Miracle : One Woman's Quest to Create her Personalized Gene Therapy

"Who lives? Who dies? Who decides? One woman's quest to save her family from a rare hereditary disorder and what it means for our collective genetic future" Jill Dopf Viles's genetic detective story takes readers on an extraordinary journey of scientific discovery, personal determination, and bioethical debate. From childhood, Jill knew her body was different - her muscles were weak, her tendons tight, and her body fat nearly absent. When doctors failed to diagnose her condition, she became her own researcher, diving deep into genetics in her search for answers.Nearly thirty years ago, Jill Viles navigated an underground blood draw and genetic study with a team of Italian scientists to solve the medical mystery that plagued her family for generations. Her relentless pursuit of answers led to astonishing discoveries, including an unexpected genetic link to Olympic hurdler, Priscilla Lopes Schliep. While Jill battles a rare form of muscular dystrophy, Priscilla's mutation, in the same gene, enhances her

herself? [Publisher's Text]

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