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Communication for "patient liberation : the role of new media in the case of chronic cerebrospinal venous insufficiency (CCSVI) in multiple sclerosi (MS)

2021 - Franco Angeli

165-179 p.

  • The article examines the opportunities for change in new media narratives. In this case new media become tools calling for "patient liberation". A case-based qualitative study was devel-oped and a phenomenological-interpretative-anthropological narrative-based medical approach was applied to examine written narrations produced online by patients, to gain insights into their experiences of illness and underlying socio-cultural factors. We found that online narra-tive played a significant role leading to greater awareness and individual empowerment of patients, and fostering mutual support and the development of community actions at the collec-tive level. [Publisher's text].

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Salute e società : XX, 1, 2021