2019 - Franco Angeli
Article
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Being a girl with a rare disease : an anthropological investigation on Turner Syndrome
94-106 p.
- Turner Syndrome (TS) is a condition that affects only girls and women and involves a partial or complete absence of an X chromosome. Some characteristics of TS include short stature and ovarian failure. Girls with TS are put on estrogen replacement therapy and growth hormone treatment. On the one hand TS is a well-recognized medical condition, on the other - a multi-dimensional cultural fact that makes its appearance in a specific historical, social and geographical context. In this text I focus on TS as a kind of a social mirror. I argue that TS is a social lens, through which one can look at various social phenomena, such as girlhood, womanhood, motherhood, medicalization. TS also challenges anthropology and its key dichotomies, including nature-culture, essentialism-constructivism, nature-nurture and body-mind. [Publisher's text].
Is part of
Salute e società : XVIII, 3, 2019-
Information
ISSN: 1972-4845
KEYWORDS
- Turner syndrome, Girlhood, Medical anthropology, Motherhood, Disability, Hormones
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In this issue
- Introduction
- Rethinking agency through children's experiences of chronic illness : when being an actor also means not participating
- Daily disruption and learning : comparing two activities for children and adolescents with diabetes
- Chronic illness and the ideology of the individual : towards a critique of the concept of agency
- Rethinking relationships among generations : active listening and children's participation in therapeutic relationships
- Youth and chronic illness : thinking age and health care trajectories among asthmatic patients
- Children living in families with cancer; the interplay between children's agency and family biographical disruptions
- Ethics and research : methodological issues in health research with children
- Being a girl with a rare disease : an anthropological investigation on Turner Syndrome
- Agency or disempowerment : children with learning disorders in France
- Illness Stories in Children's and Young Adults' Literature : Reflections on the Representation of the Concepts of Competency and Agency
- Pubblicità televisiva e scelte alimentari dei bambini
- Solitudine : malattia emergente del XXI secolo
- Comunità innovative di pratiche online come strumento di attivazione di salute : il caso Diastasi Italia
